Acs Stops Providing Support For Man
We heard rumors more than a week ago that the American Cancer Society was closing down its Man-to-Man support group network, and now we can confirm that this is the case.
While the ACS has not actually shut down any of the Man-to-Man support groups, they have apparently withdrawn all support for this program, and this will likely put most if not all of these regional support groups out of business. And so far the ACS has said nothing publicly about this decision at all. Supposedly letters advising individual Man-to-Man support group leaders were indeed sent out a couple of weeks ago.
It seems regrettable to The New Prostate Cancer InfoLink that the ACS couldnt have taken a rather more thoughtful approach to this decision. In particular, men newly diagnosed with localized and more advanced forms of prostate cancer are in serious need of help and support with respect to the options that are available to them. If the ACS does not want to be in the business of support group development and management, that is its decision, but to just drop the axe on groups that at least in some cases have worked hard for years to provide such services for men and their families, and to make no public statement about this decision, seems to us to show a significant lack of empathy on the part of an organization that claims to be in the business of supporting patients.
Women With Cancer Support Group
Location: Cleveland Clinic Cancer Center – Mansfield 1125 Aspira Court in the Lower Level Conference RoomDate: Second Month of the monthTime: 11 a.m. – Noon
- Contact: Sarah Close, LSW, MSW, 419.756.2122
Cancer Center – Judith and Richard Kinzel Campus Sandusky417 Quarry Lakes Drive in the Sycamore Meeting RoomDates: Third Monday of the monthHours: 4 p.m. – 5 p.m.
- Contact: Lori Scott, LISW-S, 419.626.9090 or 877.544.6222
Upstate Men To Men Prostate Cancer Support Group
- One-on-one visits with a prostate cancer survivor
- Community education
- Outreach and collaboration with health care professionals
Upstate Men to Men Prostate Cancer Support Group Meets Monthly at: OASIS/HEALTHLINK One Telergy Parkway/6333 State Route 298 East Syracuse, NY 13057
Meetings are held at 5 PM on the last Thursday of every month except for major holidays. The group does not meet in December.
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A Note About Online Safety
By now, we expect most folks will have heard of Zoom bombing. Were eager to avoid this issue, and that desire is why were pursuing the workflow described above. We will be closely monitoring who we allow into our Zoom call. Were not looking to exclude folks that we dont know yet, were serious in our efforts to avoid issues like Zoom bombing. Please understand if we ask you to verify your identity.
Support Group Meeting Times Locations And Contacts
If you experience any difficulty reaching the contact person listed for information about a meeting, please contact the Us TOO home office at 1-800-80-US TOO or 795-1002 Monday through Friday from 9:00 am to 5:00 pm central time.
Theres not a well-worn path from a prostate cancer diagnosis to any “best” treatment at any stage of managing the disease. Before making any treatment decisions, its very important to invest the time and energy to become fully informed about all appropriate treatment options and the potential management of related side effects. Prostate cancer survivors who attend meetingssometimes along with spouses/partnersfind invaluable information and perspective from their peers who quite often have “been there – done that” relative to their experience managing the various aspects of prostate cancer. The interactive format of a support group meeting is an educational forum that facilitates conversations to exchange information among group members assembled with the common goal of empowering each other with the knowledge that comes from experience.
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Prostate Cancer Support Group
Men who have been diagnosed with prostate cancer, regardless of current treatment status. Wives/significant others are welcome to attend. The American Cancer Society is the nationwide community based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives and diminishing suffering from cancer, through research, education, advocacy and service.
A Time For You Support Group
A Time for Youis a general cancer support group open to all cancer patients and their families including the newly diagnosed, those currently undergoing treatment and survivors.
A Time for Yousupport group is designed for individuals with a diagnosis of cancer, as well as their family members. Social support has been shown to accelerate recovery and protect against the consequences of life stress. When a patient with cancer participates in a support group composed of understanding people who have experienced or are experiencing similar problems, the person may receive emotional and social support as well as assistance in coping with the day-to -day stress of living with cancer.
The group meets the last Wednesday of the month at 6 PM at The Center for Comprehensive Cancer Care. For information regarding our support group, please call Cherrie Bentler, CRNP 445-2415.
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About Our Online Mens Support Groups
This new program is an online way for Fans for the Cure to continue to support men facing a prostate cancer diagnosis, treatment, or recovery. To be clear, these groups are men getting together online to share experiences, support each other, and enjoy the company of other men on a journey through prostate cancer.
When we asked former broadcast sports reporter and producer, Bruce Morton of , about his experience with our Online Men’s Support Group for men on a journey with #ProstateCancer, we were delighted with what he shared.
These support groups are not formal therapy or counseling. They are a way for men to gather virtually and informally to chat with and support each other.
Us Too Has More Than 200 Support Groups And Chapters In The Us And Abroad
Members of the prostate cancer community have stepped up to volunteer as leaders of support groups and chapters in locations organized internationally under Us TOO to benefit from the affiliation with the nonprofit organization and the access to materials, resources and best practices provided through Us TOO International.
Prostate cancer survivors who attend meetingssometimes along with spouses/partnersfind invaluable information and perspective from their peers who quite often have been there – done that relative to experience with a prostate cancer treatment or side effects. The interactive format of a support group or chapter meeting facilitates conversations to exchange information among group members assembled with the common goal of empowering each other with the knowledge that comes from experience.
The affiliation of each volunteer-led, independent group forms the Us TOO International prostate cancer education and support group network. Meetings are free of charge and open to newly-diagnosed patients, patients currently undergoing treatment, prostate cancer survivors, their spouses/partners, family members and friends, and health care professionals interested in sharing information and learning more about prostate cancer.
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Risk Factors Signs And Symptoms
There are several factors that can increase your risk of prostate cancer. Speak with your doctor if you believe you may be at risk for developing prostate cancer. Common risk factors include:
- Age – Most men with prostate cancer are over 65 the disease is rare in men under 45.
- Family History – A person is more likely to get prostate cancer if his father, brother or son had prostate cancer.
- Race – Prostate cancer is more common among black men than white or Hispanic/Latino men. Its least common among Asian American/Pacific Islander and American Indian/Alaska Native men.
- Prostate Changes – Men with high-grade Prostatic Intraepithelial Neoplasia , an abnormal cell condition, may be at increased risk of prostate cancer.
Yes I’ve Attended One At
Yes, I’ve attended one at our local hospital for Prostate cancer patients.
It was held monthly and I attended about 4 or 5 times. I’m sure each group is different.
My experience was that all the men were very friendly, willing to answer questions and share their experiences.
The only thing that I did not like was that all the men were age 65 plus and at the time I was only 54. Also the men seemed reluctant to talk and answer questions on how they were doing on the recovery side with erections after surgery. This might have been since many of the men actually attend the same church and did not want to get to ‘personal’ on that aspect of recovery.
Good luck to you and let us know how it goes!
Larry age 56,
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Man To Man: New Program Starts Up For Aussies With Prostate Cancer
HomeNews & MediaNewsMan to man: New program starts up for Aussies with prostate cancer
09 November 2021
A new nationwide program has been launched for men newly diagnosed with prostate cancer, and could help to reduce higher risks of suicide related to the disease.
Around 18,000 men each year will be able to access the free program, provided by Prostate Cancer Foundation of Australia .
Known as MatesCONNECT, the program will connect newly diagnosed men with trained volunteers who have been through the disease, via phone, in an effort to provide more accessible support services.
PCFA CEO Professor Jeff Dunn AO said the need for the service was growing.
For many men, a diagnosis of prostate cancer can be isolating, he said.
Having another man to talk to, who understands how it feels, can help to reduce feelings of fear and uncertainty, giving men greater ability to cope with their treatment and manage the side-effects.
MatesCONNECT will give men the type of support that can only be provided by those who understand what living with a diagnosis of prostate cancer is like.
Those who understand what its like to live through a diagnosis are well-placed to offer emotional and informational support to other men.
Men can get practical advice on surgery and treatment, and the side effects of treatment, such as incontinence, erectile dysfunction, and coping with hormone therapy.
MatesCONNECT will provide vital support to ensure these men do not suffer alone.
Look Good Feel Better
Our Look Good… Feel Better program is designed to help women better cope with the effects that cancer treatment can have on their appearance. Professional makeup artists teach makeup techniques, skin and nail care, and hair styling and head-covering options that compensate for changes that can result from chemotherapy and radiation. Look GoodFeel Better is held in conjunction with the American Cancer Society.
To register for a class or more information, please contact Cherrie Bentler, CRNP 445-2415.
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Face To Face Pca Networking Groups
Hi Will,Congrats on deciding to attend a face to face PCa networking group. My husband and I began investigating PCa groups soon after his dx. We live near several large cities so we were fortunate to have as many as six different PCa networking groups nearby, all located within convenient driving distances. All had various affiliations or sponsors, i.e., a hospital, a tx center, ACS, US too, etc.
From our experience, most PCa groups seem to be of the networking variety with a focus on PCa education through members sharing & exchanging experiences and knowledge, all under the guidance of a trained facilitator. Hard copies of PCa newsletters, the latest media releases or studies related to PCa, etc. are usually available as handouts. If new attendees wish and are comfortable doing so, they are given the opportunity to share their PCa “story” with the group, encouraged to ask questions, and receive feedback . As mentioned in a previous post, sometimes guest speakers from the medical community are scheduled to give an educational presentation to the group on a PCa related subject of interest.
There were many differences between the networking groups we visited, some much better than others. As indicated in another post, if there are other PCa groups in your area, I would encourage you to “sample” as many groups as possible in order to find the right âfitâ for you.
For anyone interested in locating face to face PCa networking groups, below are a few more links:
Virtual Us Too Prostate Cancer Support Group Meetings
Huntsville Third Thursday of the month 7:00 PM CT David McElhaney 407-341-4462
Phoenix First Monday of the Month 7PM MSTTed Hinderman 480-363-0204
State of CA only: 3rd Saturday of month at 10:30am PT men and caregiversKevin Axelrad 310-393-2186
State of CA only: 2nd and 4th Wed of Month at 6:30pm PT men onlyPhil Dipaola 818-618-7700
Oakland: 2nd Tuesday of Month 7pm PTBruce Linde 510-206-9730
Sacramento: 3rd Thursday of Month at 1:30pm PTBeverly Nicholson 916-962-8892
San Jose: 3rd or 4th Thursday of Month at 7pm PTMike Culcasi 408-391-0375
San Joaquin County Stockton: 3rd Tuesday of Month @ 10:30am PT Darrell Wilson 707-628-5901
Santa Barbara: 2nd Tuesday of Month at 12pm PTScott McCann 805-964-0294
Fullerton: 2nd Thursday 11:30am 1:00pm PT, 4th Thursday 5:00 9:00pm PTNeal Berke 714-459-2058
Brampton, ON: Virtual meeting, 2nd Tuesday 7 to 9pm email Jim for the link
Dansbury: First Wednesday of each month, 6:30pm ETLen Sierra 203-240-6728
Fort Collins: 2nd Tuesday of Month at 6pmBill Dieterich 970-226-1181
The Villages: 1st Wednesday of Month at 7pm ETFred Barone 407-256-0274
West Palm Beach/Wellington: 1st Thursday of Month at 7pm ETKeith Colombo 561-310-0158
Sarasota: 3rd Thursday of each month at 6pm ETLen Sierra 203-240-6728
Atlanta: 1st Wednesday of Month at 11amFrank Eady [email protected] 404-778-5976
Honolulu: 3rd Tuesday of Month 7pmPaul Mizue 808-222-0425
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A Woman Joining Man To Manalone
As far as I can tell, Im a pioneer: the first woman in my chapter of Man to Man to join by herself. It took me a lot longer than it should have, considering the fact that my husband had been diagnosed and treated for prostate cancer almost three years before I stood up in front of a group of almost all guys and told our story.
In those days, Dean was still resistant to the idea of a monthly meeting. Prostate cancer was behind him and he wanted it to stay well to the rear. But we had changed, and it was cancer that had done that to us, generating questions like, How do we reinvent intimacy? Who am I now? Why am I so lonely? Pragmatic questions about new forms of treatment, and what to do if cancer were somehow to return I hoped, would be discussed in depth, with updates on the various treatment options into the bargain.
In part I joined the meeting because, at the three year point I was actively writing this book, and Man to Man has a research dimension for me. But if there had been no book goading me to join, Id be a lot sadder and more confused and certainly more ignorant. The big questions in paragraph 2 above come up in an oblique sense occasionallyeveryone is scared of them, I sense. Theres plenty of practical information to be had, and then there are the blessings. .
Blessing #1: Weve made good friends in the group we hope to keep for life.
Join Our Online Support Group
When gathering online, we will use the online meeting tool, Zoom. In order keep our Zoom calls as safe and welcoming as possible, well use the following procedures for gaining access to our Zoom calls.
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Man To Man Prostate Cancer Education And Support Group
Man To Man Prostate Cancer Education and Support Group is a forum for anyone that is interested in learning about prostate cancer and male health issues through presentations, written materials, and videos. Man To Man meets the 2nd Monday of every month at 7 PM atThe Center for Comprehensive Cancer Care.
The group helps men and their families cope with and understand prostate cancer treatment options and quality of life issues after treatment. Professional speakers are invited each month to talk about prostate cancer and quality of life issues.
To register for the Man to Man Program or for more information, please contact Cherrie Bentler, CRNP 445-2415.
Gold Coast Partners Support Group
HomeSupportFind a support groupGold Coast Partners Support Group
Men’s Cancer affects more than just the patient
Maggie Angus husband was diagnosed with prostate cancer last year and the resultant treatment, treatment side-effects and post-treatment care caused her to seek others in similar situations to compare notes from the point-of-view of the other half. This has led to the establishment of a Gold Coast Partners-of-men-with-prostate-cancer Group. Maggie takes up the story below.
The diagnosis of my husbands prostate cancer last year was the start of a journey neither he, nor I, were prepared for. In the last month he has also had to contend with the removal of a basal cell carcinoma and a melanoma.
While it is a traumatic time for men following diagnosis and coping with incontinence and erectile dysfunction following surgery, it can also be a confronting time for spouses and partners. I know it was for me. You need to deal with so many unexpected issues and half the time they just seem to creep up on you without you even realising theyre coming. Then you become aware that you dont really know too much about the after effects of Prostate Cancer and just need someone to talk to. It has the potential to change the landscape of your relationship.
Following a radio interview and several published articles, women started calling. There was obviously a need for a Prostate Cancer Support Group for Partners on the Gold Coast.
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