Tuesday, October 4, 2022
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Gay Prostate Cancer Support Group

Breast Cancer Support Group

Shine a Light Prostate Cancer Support Group

The UCSF Advanced Breast Cancer Support Group is offered for patients who have been diagnosed with stage-4 breast cancer.

Location: Online. Please contact us for information and availability.Meetings: First Tuesday of the month, 5 6:30 p.m. third Tuesday of the month, 1 2:30 p.m.Contact: 476-3315

How Can We All Help Increase Awareness And Address The Needs Of The Lgbtq Community

Any and all positive press is good. We depend a lot on word of mouth, but articles in respected publications such as the New York Times have increased interest. Health information outlets in hospitals and in areas where the LGBTQ community might see it is also important. We should let our providers know about this resource and ask them to share with patients who they think might benefit from the group. Having the resources of the Center and its newsletter has been beyond valuable for the viability of our group!

Ideally, prostate support groups can help educate and empower us all to be bolder and more open in informing providers and the public regarding the needs of gay, bisexual, transgender, and intersex people with prostate cancer.

Study Participants And Recruitment

Participants for the study were recruited from Malecare, the largest mens cancer support group and advocacy organization in the USA. Malecare facilitates both in-person and online support groups, including online support groups for GBMPCa and specific groups for GBM facing urinary and sexual dysfunction problems . The study was introduced to allMalecare members via email and via the Malecare e-newsletter, which included a link to the studys website where participants were screened for eligibility. The study population is adult , English-speaking GBM treated for PCa living in the USA. Those undergoing watchful waiting or had completed treatment less than 6 months prior to eligibility screening were ineligible. Those interested and eligible completed an online informed consent process and scheduled a time for a one-on-one telephone interview. Participants were compensated $35 for their time.

The study used a stratified sampling approach for GBMPCa. The sample was stratified a priori radical prostatectomy surgery, radiation therapy, and any other treatment to gather sufficient depth of experience across three common prostate cancer treatment types. Recruitment of the sample was by convenience . Participant characteristics are presented in Tables 1 and and22.

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Brain Tumor Caregiver Support Group

The UCSF Brain Tumor Caregiver Support Group is facilitated by a social worker who specializes in neuro-oncology. This emotional support group is open to caregivers of UCSF neuro-oncology patients only. Registration is required. Visit the UCSF Brain Tumor Center’s Neuro-Oncology Gordon Murray Caregiver Program to learn more about support services for caregivers.

Location: Online. Please contact us for information and availability.Contact: 514-5674

Prostate Cancer Community Spotlight: Jim Early

New Brisbane Support Group For Gay Men Experiencing Prostate Cancer
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Jim Early is a prostate cancer survivor and runs a support group for gay and bisexual prostate cancer patients through the California-based LGBTQ Community Center of The Desert. He talks about the power of support groups, what topics come up most often, and what he wishes others knew about the effects of prostate cancer on the LGBTQ community.

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Implications For Future Research Policy And Practice

Additional support resources tailored for and directed to GBMPCa seem highly relevant and in high demand. In particular for this analysis, the expressed wish for or use of support groups for other gay men with prostate cancer was noted. Clinicians treating GBMPCa should consider referral to local groups where available and/or to online groups to meet this need. Clinicians should take into account the more varied support network GBMPCa may have, specifically the central role of friends and other family. Future work with spouses/partners of GBMPCa is warranted, should consider the variation in the partners role, and examine how it may be related to patient outcomes.An avenue for future research would be to test how social support is associated with differences in PCa outcomes between GBMPCa and other men.

Social Support Before Beginning Treatment

Informational/appraisal support

Much of the social support GBMPCa reported during diagnosis was a combination of informational and appraisal support to understand prostate cancer, treatment options, and treatment side effects to inform their own treatment decisions. Men sought out social support groups to find information about possible treatments and side effects because they wanted to hear directly from first hand experiences and to aid in their own decision making process regarding treatment. Many men mentioned going to support groups for gay men however, not all mention explicitly the sexual orientation parameters of the group.

A number of men reported engaging with both- online and in-person- support groups during this phase of their prostate cancer experience. Many of them reported receiving informational support about different treatment types and their side effects.

I decided that I didnt want to go through the incontinence and all of the surrounding stuff with the surgery probably 80 percent of the guys in the support group over at Center have had either SBRT or CyberKnife , so it was a comfort level .

My urologist told me about a support group here in the city for gay men with prostate cancer. I joined immediately and I learned most of what I know from them.the group was full of information.

Emotional/Informational

Social Network for Support Before Treatment

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Bladder Cancer Education And Support Group

The UCSF Bladder Cancer Education and Support Group is available so that patients with bladder cancer as well as their caregivers and family members may share experiences, educate one another and support each other.

Location: Online. Please contact us for information and availability.Meetings: First Thursday of the month, 5:30 7 p.mContact: 514-1707

Comparison To Prior Literature

Keep sharing – with Metro Walnut support group

Our findings clearly articulate how GBMPCas social network influences availability and receipt of social support. The provision of support by parents, siblings and friends contrasted with the existing literature of social support for men with prostate cancer. Much of the qualitative studies of support for men with prostate cancer focus on spouses, the vast majority of whom are wives. Notably, partners in this sample played quite varied roles for appraisal support at diagnosis and instrumental support through treatment this contrasts with literature from wives of men with PCa who are more consistently involved throughout the treatment process. In contrast to the dominant literature, only one mentioned adult children. These findings also highlight the unique role friends sometimes conceptualized as chosen family can and do play in gay, bi, lesbian and transgender social networks. Many men mentioned wanting a specific group for GBMPCa where they felt more shared experiences with the other members of the group. This might reflect gaps in the mens social network with respect to informational or emotional support specific to prostate cancer.

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All Cancer Husbands And Significant Others

The UCSF All Cancer Support Group for Husbands and Partners is for men whose significant other has cancer. The group explores positive ways of coping, provides emotional support, and shares information on treatments, side effects, complementary therapies, financial concerns and insurance issues.

Location: Online. Please contact us for information and availability.Meetings: Second and fourth Tuesday of the month, 5:30 7 p.m. Contact: 514-6338

Social Support After Treatment

Informational/Emotional Support

After treatment, the primary type of support men reported was informational and emotional support about sexual rehabilitation. Other men mentioned a transition from needing and using support informational and emotional to providing this support by remaining active in prostate cancer support groups.

Being the age that I am, I think all I would ask for in the future is what we can do for our younger brothers who are just experiencing this for the first time, and allowing them to have someone to talk to, or someone to depend on, or to learn from. Im about giving back.

Support Network for Support After Treatment

For the support GBMPCa needed after treatment, men were selective as to whom they talked to regarding sexual side effects. Some confided in partners, others to friends or other social support groups, but generally less on family. A distinct minority of men noted helpful friends and sympathetic partners.

Afterward, when I realized even with injections and treatments that were there, I felt like I would never find another partner again and there was a depression. And I thought well, this is it. Im just going to be celibate and that kind of thing. But then a friend of mine said Try going on the web. And found other people in my situation, and it worked.

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Is Lgbt Walnut For You

Are you a man who has sex with men, whether or not you identify as gay or bisexual, and do you have prostate cancer or are you affected by prostate cancer? Or have you had either investigations or treatments for prostate cancer? If so, then LGBT Walnut is for you, but please contact us first before coming to a meeting. We mainly cover the Greater London area and parts of South-East England but welcome you wherever you are based – our online meeting on the first Saturday of the month is to allow other from all across the UK to attend. There is help and support out here where ever to live in the UK.

If you need to talk openly and without worrying about the reaction from others about how prostate cancer and its treatments have affected you, or might affect you, you’ll be able to do it with us because we’re not straight either.

Are you a Trans woman who has prostate cancer or has had investigations or treatments for prostate cancer? If you are, then LGBT Walnut is for you, but please contact us first before coming to a meeting.

Are you a lesbian who has a close male relative who is affected by prostate cancer and wants to know more? If you are, then LGBT Walnut is for you, but please contact us first before coming to a meeting.

Resources For Lesbian Bisexual Queer And/or Questioning Women

Prostate cancer group for gay and bisexual men

Support Groups Currently there are no dedicated cancer support groups for same sex attracted women active in NSW. The Cancer Council Information and Support Data base provides information on all support groups across NSW. Please contact Sally Carveth or Kim Pearce to discuss the purpose of groups, which may reflect more inclusive support groups.

Janette, who is co-facilitator of the C Word Cancer Support Group for lesbians and same-sex attracted women, describes how she was changed by her cancer experience.

#TalkTouchTest is an ongoing breast health campaign from ACON for all LBQ women and the broader LGBTQI communities. For more on this, see The Inner Circle.

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All Cancer All Stages

The UCSF All Cancer Support Group is a free weekly gathering open to patients with cancer of any type and in any stage. Please contact us for more information and to register. Please note that this group is for patients only.

Location: Online. Please contact us for information and availability.Meetings: Wednesdays, 5:20 6:50 p.m. Contact:

In Chicago A New Approach To Gay And Bisexual Men With Prostate Cancer

A new clinic focuses on patients left grappling with the aftermath of treatment in ways that are rarely appreciated by doctors.

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CHICAGO Matthew Curtin learned he had prostate cancer after a routine physical examination in October 2019, when test results indicated there was a problem. A biopsy confirmed the news, and doctors told him that surgery to remove his prostate was the best option.

The surgery went well, and, two years later, there is no indication that the cancer has returned. But for Mr. Curtin, 66, diagnosis and surgery were only the beginning of a clinical and psychological and emotional adventure one he felt that many urologists were not equipped to handle, because he was gay and the majority of doctors and their patients were not.

Post-treatment symptoms are similar for all prostate cancer patients, including urinary incontinence, erectile dysfunction, diminished libido and loss of ejaculate. But researchers are finding that those changes may echo through the lives of gay and bisexual men in unexpected, and sometimes more difficult, ways.

The obstacles can be physical and emotional, and may be reflected in patients relationships with their partners. And they may present a challenge to medical professionals more attuned to the relationship needs of straight men.

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What Out With Prostate Cancer Is About

Our Group offers emotional comfort and support as well as its own wisdom and practical information to those who face the many challenges that are presented by the diagnosis of prostate cancer. . Our Group is directed primarily at gay and bisexual men and trans-women, including those who are:

  • frightened by what is happening to them
  • a loved one or partner who wants to know what they are experiencing and feeling is normal and shared by others
  • apprehensive about treatment and want to see how others have coped
  • are coping well and don’t need support รข but come along to support others
  • smiling after beating cancer and attend the Group to show others that cancer can be beaten

Through the sharing of experiences, down-to-earth anecdotal advice and the provision of an open forum, the Group aims to assist members to reduce feelings of isolation and to gain perspective. The Group helps people to recognize their own inner resources for strength, peace and healing.

Caregiving And Social Support For Gay And Bisexual Men With Prostate Cancer

Men’s Continence and Erectile Function After Prostate Cancer Surgery – by Stuart Doorbar-Baptist

Division of Epidemiology and Community Health, School of Public Health, University of Minnesota, Minneapolis, MN, USA

Correspondence

Benjamin D. Capistrant, Division of Epidemiology and Community Health, University of Minnesota, 1300 S 2nd St., Suite 300, Minneapolis, MN 55454.

Division of Epidemiology and Community Health, School of Public Health, University of Minnesota, Minneapolis, MN, USA

Correspondence

Benjamin D. Capistrant, Division of Epidemiology and Community Health, University of Minnesota, 1300 S 2nd St., Suite 300, Minneapolis, MN 55454.

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What Do You Wish Others Understood About The Effects Of Prostate Cancer On Gay Bisexual And Transgender People

That is a hard one. I guess the importance of feeling sexual and the expectation of sexual activity into the senior years makes prostate cancer treatment success even more important for our community. The LGBTQ community is very open about sex and all men, certainly gay men, talk a lot about the physical aspects of sex and socializing involving sex. One of the aims of the group is to encourage its members to fully engage socially and not to be afraid to examine their fears and not let the disease destroy their social and sexual lives.

New Developments In Cancer Research

Blood tests.New blood tests that look for minuscule shards of DNA or proteins to detect a variety of cancers have won praise from President Biden, who made them a priority of his Cancer Moonshot program. Supporters say the tests can find tumors when they are still small and curable, but a definitive study to determine whether the tests could prevent cancer deaths has yet to come.

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Support Groups And Community Organizations

American Cancer Society Survivors Network: Gay Men Talk About CancerThis online forum offers a place for gay men and their loved ones to discuss issues related to cancer.

American Cancer Society Survivors Network: Lesbians Talk About CancerThis online forum offers a place for lesbians and their loved ones to discuss issues related to cancer.

The Callen-Lorde Community Health Center provides sensitive, quality health care and related services targeted to New Yorks lesbian, gay, bisexual, and transgender communities, regardless of their ability to pay. To further this mission, Callen-Lorde promotes health education and wellness, and advocates for LGBTQ health issues. They have many health centers across New York City, so visit their website or call for more information.

CancerCare275 7th Avenue New York, NY 10001Provides counseling, support groups, educational workshops, publications, and financial help for people with cancer.

Destination Tomorrow452 E 149th Street, 3rd FloorBronx, NY, 10455Destination Tomorrow is an LGBTQ community center located in the Bronx borough of New York City. It provides many services for the LGBTQ community such as medical and mental health services, career services, and support programs.

Fenway HealthFenway Health is a community health center located in Boston, Massachusetts. Their site also provides education, training, and resources for LGBTQ community members and healthcare providers.

SAGE: Advocacy and Services for LGBT Elders

Blood Cancer Support Group

Prostate cancer support groups: information for LGBT people

The UCSF Blood Cancer Support Group is an informal educational support group for hematology and bone marrow transplant patients. Family members are welcome to attend. Registration is required.

Location: Online. Please contact us for information and availability.Meetings: Second Tuesday of the month, 3 4:30 p.m.Contact: 353-2965

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Gynecological Cancer Support Group

The UCSF Gynecological Cancer Support Group is a drop-in support group for women who have been diagnosed with any kind of gynecological cancer and are in any stage of treatment.

Location: Online. Please contact us for information and availability.Meetings: First and third Wednesday of the month, 4:30 6:30 p.m.Contact: 514-1962

Nbc Outlgbtq History Month: Transgender And Gender

Ive been a gay activist and been out so long that I took it for granted I could talk openly to my doctors, he told NBC News. But even he was unprepared for the side effects.

“Your sex drive can take a nosedive,” Brass said, adding that prostate cancer can also lead to erectile dysfunction. “Youre experiencing ED, but that doesnt mean youre not experiencing sexual attraction,” he said.

About 20 percent of patients treated with radiation experience irradiated bowels, which can make receptive anal sex painful or even impossible. Treatment can also affect penis size, ability to ejaculate, experience of orgasm and urinary continence during sex. Brass said his sexual function was relatively good, but instead he struggled with incontinence for weeks using as many as nine pads a day and staying within yards of a bathroom at all times.

If youre gay and you go to a urologist who hasnt dealt with gay men, theyll tell you, ‘Bring your wife with you.'”

He joined a prostate cancer support group specifically for gay and bisexual men at Mount Sinai Hospital in Manhattan, one of several organized by the national advocacy organization MaleCare.

Being with other queer men allowed us to be very open about our feelings and our sexuality and to be empathetic with each other, Brass said. Too often gay men are erased in these groups. They dont want to hear other men be vulnerable, and they dont want to hear about gay sex.

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